The ILFA (International Lymphoedema Framework Australia) ran a series of national surveys in 2012 and 2013 to determine the issues impacting on lymphoedema care and support across Australia. Resondents to the survey included people with lymphoedema, carers and practitioners from metropolitan as well as rural and remote parts of Australia. The ILFA's survey results were fundamental in assisting the Lymphoedema Action Alliance to determine the key issues to be addressed.

ACTION 1  Lymphoedema Services

 

Equitable access to quality lymphoedema services in NSW.

 

All people at risk of, or living with, lymphoedema should receive appropriate physical and psychological care within the public health system. Service information should be easily accessible.

 

The Lymphoedema Action Alliance recommends that:

  • Detailed information about public lymphoedema services eg staffing, times and referral options be made available on the NSW Health website and Cancer Institute’s CanRefer website.

  • The NSW Minister of Health make available adequate funding to ensure 62.5 full time equivalent lymphoedema therapist positions are provided across Local Health Districts on a population basis.

                               

                                 to see full referenced document.

 

 

 

ACTION 2  Compression Garments

 

Equitable and sustainable access to affordable lymphoedema compression garments nationally.

 

All people with lymphoedema should have access to appropriate and affordable compression garments in order to manage their lymphoedema. These are critical to enable people to do daily activities, work and socialise as well as prevent many side effects from lymphoedema, such as cellulitis.

 

The Lymphoedema Action Alliance recommends that:

  • We work with all interested stakeholders including compression garment manufacturers and distributors, medical device and pharmaceutical companies, consumer groups, research and medical groups to collate evidence (both clinical and economic) that demonstrates the value of compression garments for people with lymphoedema.

  • We use this information to explore all possible long term funding options, both state and federal, to determine a sustainable and equitable garment access system.

 

                                 to see full referenced document. (Coming soon...)

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